mintee: Tallima, I am sorry to hear of your struggles. I hope you both see an end to the pain and fear and begin to enjoy all the adventures a healthy young child can get into, with you chasing after him yelling exasperatedly for him to slow down or he'll poke his eye out :-)
Tallima: Thanks! I wrote my post poorly due to sleep-deprivation. Company of Heroes + early work hours = tired Tallima. :) So my grammar and spelling really made the post a tough read.
Anyway, he's "alright" right now. Mostly good, anyway. He has a very messed up back, but right now he's running around and poking his eye out. But in a few months, he'll be having another big surgery.
We've grown accustom to these surgeries, but 3 surgeries ago he almost bled out. That one taught us a healthy amount of fear.
So after this one (in March), he'll be down for a month, and then in rough shape for 6 after. But then he'll be back on his feet. He won't be able to do any sports (which really pisses him off :D), but he'll be fine. He'll have a small surgery every 6 months after this one to update his back and then another big one in 3-4 years and then they'll fuse his whole spine when he's 14 or so -- that'll be a big one.
Once we had our son, we learned that we're hardly anything special. Many, many, many people deal with hardships with their family's health. It's part of life. It's a tough part, but it's also filled with many joys, encouragements and massive heaps of love.
I've got my own issues with my son, which im not really wanting to go into on such a public forum.
But yes, it does teach you humility and absolute pure terror (actual terror, not the made-up stuff fox sells) to know that at any minute you could lose your son. It's not joyful. It's not a release to see your son in pain and know there is a very real possibility of him not being there in the morning.
For me to see someone finding joy in a childs death, even as a coping mechanism, is creepy, and that will always be my opinion. They can feel the way they want. I can feel that it's creepy.